Tag Archives: data management

Speaking to the Future: What Got Caught in the Safer Internet?

[I’ve recently been asked by several readers to share a piece I initially wrote, for young teen readers, to commemorate and celebrate Safer Internet Day 2012.  This piece was written with a view to instigate and enable conversations between young people and adults, parents and children, about the problems and potential solutions surrounding internet safety.  Here is that piece, which is not part of the ‘Capital I’ Innovation Interview Series:]

When I was asked to write a piece about the future of internet safety, I realized that I am not generally one to give my opinion – on paper at least.  Generally, my job is to interview people and note their opinions.  With that in mind, I decided to interview the future me, the me of 2022, ten years hence, and hear her opinions about the then, current, state of security on the net.

An interview with Kim Chandler McDonald, Executive Vice President and Co-Founder of KimmiC, futurist and hyper-technology expert: February 8, 2022 – Sydney, Australia

Kim Chandler McDonald (as she hopes to look in 2022)

What led you to become involved with Safer Internet Day?

I first became involved over ten years ago when I was asked to write a piece about my views on the future of internet safety, a subject I was, and still am very interested in.

Why the interest?  Surely now, after ten years, the internet is much safer.

Oh yes, certainly compared to 2012 the difference is quite striking – especially when it comes to personal data. When I first became involved with Safer Internet Day, the internet was a place with few ‘walls’ and almost no one was able to ‘lock the door’ to their data.

Very few people were aware that they owned their own data. Though the data wasn’t owned by social media sites, they did borrow it – often without permission – and they made money from it, either by selling the data itself, or by using it to sell us things.

That borrowing often led to random strangers being able to access information about us which they shouldn’t have been able to get to.

You make it sound a little like stealing.

I wouldn’t go that far, but… well, lets just say that I’m very glad we now have the power, the the responsibility, to guard our ‘property’ – the place we live on the net – and the stuff we have there… our data.

How did that happen?

It started with IdentityTech authentication protocols.  Once authentication of parties involved in a communication stream became necessary, and individuals were able to control this process themselves – i.e. you decided who had permission to contact you, be it individuals or companies – the common ‘phishing’ communications (or spam) of the first 10-15 years of this century soon dried up.

It’s funny, because we now look back at that time, without permission based contact and authentication, as anarchy.

Was it really that bad?

In some ways, worse than bad.  Lets look at it this way, IdentityTech gave us the power to protect ourselves and our property, so that strangers couldn’t get at it. Lets think of the internet like a house – your online house.  Can you imagine someone you don’t know wandering into your house and rummaging through your things?  Essentially, that’s what was happening on the internet.

IdentityTech gave you a lock and key to your online house.  Now strangers can’t barge into your house and start looking at your pictures and reading your diary.  Anyone who wants to do that has to have your permission. Its sounds like a small change but it actually had a very big effect, on individuals and on some very large companies and industries as well.

How did it change things for individuals?

I’m sure there are countless ways, but a few that come to mind are things like the reduction in online predators (people preying on the vulnerable or less experienced), cyber-bullying, identity theft, and the reduced proliferation of violent/hate sites.  All these things had a huge effect, not just for individuals, but for communities as well.

A safer internet seemed to spread out and be reflected in safer neighbourhoods, town, cities and countries.  I think that’s part and parcel of us deciding to take more responsibility for what we allowed in our lives via the net.

You mentioned changes to companies and industries as a a result of this IdentityTech, can you give me an example?

Well, lets take social media as an example.  Certainly there was a time when social media companies would collect and use information about people.

You make it sound like something out of a spy novel.

That’s funny.  No, that’s not what I meant.  But, it is true that these companies took your data and used it to make money for themselves – they acted like they owned it.  I guess we, the public, didn’t know better at that time… and maybe we were a bit lazy too.  But this changed as the new digital economy matured.  That was already beginning to happen by mid-2012.

One of the consequences of the new digital economy, which IdentityTech enabled, was the realization by individuals – people like you and me – that our data is just that, OUR data.  It didn’t belong to anyone else, and it certainly couldn’t be used, or sold, by anyone else without our permission.

Once people realized that they owned their data, that it had value, and that they could have control over who, when and where this information was provided to other parties, things began to change rapidly.  Data was acknowledged to be a unit of the connected economy, and though it could be available 24/7, it had to be done so in a universally secure and non-proprietorial way – hyper tech enabled that.

But social media companies are still here, and some are still flourishing.

Of course they are, but now they have to share revenue from any profits they make from using our data.

Okay, I don’t get a personal cheque from them each month, but I am pleased that they have to deposit ‘our’ money into trusts, which have been set up to put money back into the public domain and pay for things like the free broadband connectivity which everyone enjoys today.

It’s meHealth I’m Talking About – The To Do List

The following is a list of meHealth issues, and an overview of some of the steps necessary to solve them: meHealth

  • Convince stake holders of the efficacy of Personal Healthcare Pages and/or (PHP) National Electronic Health Records (EHR)
  • Enable all healthcare stakeholders (consumers, healthcare givers, healthcare managers) to use the Web as a platform to share information, deliver care and build communities
  • Enable patients to make better lifestyle choices

Collaborative Health

  • Convince stake holders that Collaborative Health Care (CHC) is a cheaper, safer, and better system
  • Enable single points of contact, self service and self help
  • Enable Doctors to make better diagnoses and prescribe better treatments through access to more useful and integrated data
  • Enable data aggregation to produce useful data of clinical significance for researchers evaluation, teaching doctors and development of health services

Non Vendor Locked Tools

  • Ensure systems are easy and economical for use by all stakeholders
  • Enable tools that help patients feel more informed, included and valued
  • Enable medical help via Web sites/browsers and smart phone apps
  • Enable easily understandable bundles of products and services that can be compared on quality and price, and used by stake holders with a wide range of capability levels
  • Enable access to and co-ordination of home based medical equipment / tools and assessments along with data-generating Web-enabled devices
  • Enable tools for doctor patient dialogue
  • Enable healthcare givers to electronically interact with patients regardless of where they are located
  • Enable disparate IT systems and processes to connect and co-ordinate with each other
  • Enable secure flexibility within mobile services, using such tools as PDAs and VOIP processes
  • Enable healthcare managers to better respond to emergencies and rapidly assess the national impact of particular treatments

Governmental Issues

  • Enable and enhance uptake by governmental agencies
  • Support government responsibility for public infrastructure and systems
  • Enable support for vast consumer and care provider populations in urban, suburban, rural and remote locations
  • Enable effective co-ordination and oversight of national E-Health activities
  • Enable tools and systems which support informed policy, investment and research decisions

Security and Privacy

  • Ensure security of all data transfers
  • Ensure privacy for patients
  • Enable confidential electronic information to be securely and seamlessly accessed and shared, by the right person at the right place and time, regardless of their location

Standards

  • Either create and enable record system standards and benchmarks, or make standards unnecessary by enabling different systems to talk/work with to one another without vendor lock, using a Web 3.0 / Semantic Solution

Data Management

  • Incentivise enhancement of IT and information management
  • Incentivise investment in infra- and info-structures
  • Ensure easy and economical training and support
  • Ensure implementation is cost effective

Infrastructure

  • Maximize existing information management and technology to improve functionality
  • Upgrade old computers and dial-up Internet access or ensure they can work within the new system
  • Ensure new systems are designed with potential user consultation
  • Support Funding to improve rural ICT infrastructure
  • Ensure broadband / ‘chatty’ high-speed connections are not necessary for most clinical consultation (Systems can be broadband based, but must not be broadband bound)

Costs

  • Reduce/Eliminate errors, inefficiencies and the wastage of time and effort
  • Lower healthcare provisioning costs
  • Ensures cost and service level transparency
  • Lowers costs on families and communities supporting the elderly
  • Cut time needed to review and implement systems and training
  • Modernise the management and transmission of data
  • Consolidate medical records/services and clinically relevant information
  • Remove duplication of healthcare efforts, expenditure and solutions
  • Reduce administration time and costs
  • Combine insurance systems reducing duplications and high overhead costs

Systems and Processes

  • Enable an integrated health care delivery system
  • Link emergency and acute hospitals with tertiary care in the community sector
  • Enable integrated healthcare delivery systems and the consolidation of medical records/services
  • Ensure B2B applications (i.e. reporting, billing and claiming processes) are integrated into general practice software systems
  • Enable the secure viewing and following of healthcare processes
Well, there is.
Bottom line: meHealth makes money, and it makes sense.
If you want to talk about the tech,  get in touch!


It’s meHealth I’m Talking About

The move from eHealth to meHealth

eHealth can and should provide options for how stakeholders (consumers, care givers and healthcare managers) manage and interact with the healthcare system across geographic and health sector environs.  That said, if there is anywhere that Capital I Innovation is essential, I believe it is in the field of eHealth.

The term eHealth has become nigh on ubiquitous.  And yet, it is somewhat nebulous, as it can be perceived as being perceptively less than personal.  meHealth, however, is different. It demands that I, you, we, take it upon ourselves to take responsibility.

Responsibility for what?

Responsibility to expect and demand that all healthcare stakeholders at the local, regional and national – and, dare I say, international – level to work together to ensure that affordable, effective healthcare is available to one and all.

e-Health uses the internet and related communication technologies to improve healthcare delivery, collaboration, diagnostics and treatments, while reducing errors and costs.

Thus far most arguments for eHealth take-up have relied upon Web 2.0 solutions such as MedHelp, MyGP, patientslikeme and Hello Health – each excellent initiatives.  Unfortunately, these arguments for adoption, though interesting, have not been compelling enough to engender a rush towards mass adoption, at least not by healthcare service providers.  But, with the advent of Web 3.0 solutions, this situation should soon change.  It must.  However, this will only happen if all stakeholders take on the responsibility of demanding the change; this is the time for the change to meHealth.

In my recent conversation with ‘father of the internet’ Vint Cerf, we discussed eHealth. Vint remarked ,

“From my point of view, there is no doubt that having records which are sharable, at least among physicians, would be a huge help.  When people go in to be examined, they often have to repeat their medical histories.  They don’t get it right every time, they forget stuff.  Yet the doctors are not in a great position to service a patient without having good background information.  I am very much in favour of getting those kinds of records online.

If we were able to harness the electronic healthcare system to provide incentives for people to respond to chronic conditions, which are generally the worst problems we have in healthcare – whether its heart disease, diabetes, cancer, [obesity] – to take better care of themselves, then we would reduce a lot of the system costs, simply because we had a more healthy population.”

Unsurprisingly, I agree with Vint.  However, regardless of how involved individuals are in bettering their meHealth, we cannot ignore the fact that pressure on the healthcare industry is rapidly increasing, as is the cost of provision.  It is in this area where new technologies can be of great import by enabling the healthcare sector to operate as an effectively co-ordinated, interconnected system, which:

  • Lowers costs and eliminate wastage of time and effort
  • Lowers costs on families and communities supporting the elderly
  • Enables integrated healthcare delivery systems
  • Consolidates medical records/services
  • Enables the viewing and following of healthcare processes
  • Enables single points of contact, self service and self help
  • Ensures cost and service level transparency
  • Enables disparate IT systems and processes to connect and co-ordinate with each other
  • Supports vast consumer and care provider populations
  • Removes duplication of healthcare efforts, expenditure and solutions
  • Enables confidential electronic information to be securely and seamlessly accessed and shared, by the right person at the right place and time, regardless of their urban, suburban, rural or remote location
  • Enables effective co-ordination and oversight of national E-Health activities
  • Supports informed policy, investment and research decisions
  • Enables secure flexibility within mobile services, using such tools as PDAs and VOIP processes
  • Reduces errors and inefficiencies

All the above points are important, but the final one may be the most vital of all. Why?

Because in Australia, in 2010, approximately $3 billion was wasted in avoidable annual expenditure.  Australia has a population of over 22.5 million, the US has a population of nearly 311 million and China has a population of over 1.3 billion – you do the math.

Do you need more convincing?  How about this. Annually in the US approximately 225,000 people die as a result of erroneous medical treatments and hundreds of thousands are made worse by being misdiagnosed or given inappropriate treatment.  Added to that, the costs of medical problems caused over 60% of all personal bankruptcies filed in 2007.  These are just a few of the reasons why reducing, if not eliminating, errors and inefficiencies is imperative.

I think most of us are agreed that making these changes would be a good thing. So how do we do it? Its a big ask I know. And yet, it must, and can, be done. What is needed is a plan, and here is my To Do List. I welcome any and all who are interested in moving this debate forward to add to this list.

In next week’s post, we will look at eHealth and meHealth from the perspective of patient advocate ePatient Dave.